Members Login
Username 
 
Password 
    Remember Me  
Post Info TOPIC: Almost 32 weeks with truncus arteriosus


Member

Status: Offline
Posts: 6
Date: Apr 11, 2011
Almost 32 weeks with truncus arteriosus
Permalink  
 


Hey ladies! I am new here, but wanted to share the remainder of my pregnancy with you all. If you happened to see my posting on Facebook, we are expecting our third little boy at the beginning of June. We found out in late January that he had a rare, complicated heart defect called truncus arteriosus. We had to switch hospitals and care providers, so I am now under the care of a team of pediatric cardiologists, perinatologists, and a cardiothoracic surgeon.

Starting next week I have 2 NSTs each week until Lukas' delivery. On top of that I have bi-weekly growth scans and fetal echos in addition to routine appointments with the perinatologist. That means some weeks I will be at the hospital as much as 4-days a week. Bleh. We are meeting Lukas' surgeon on the 27th for a consultation to discuss what the tentative plan is for Lukas and what his open heart operation will entail. I am definitely nervous, but have heard amazing things about this surgeon. Our cardiology team actually said he was "magic" in the operating room and he came highly recommended by several friends I have who are doctors and nurses, as well as a few other Hoosier heart moms I have met through my blog. 

Our last appointment was Tuesday, the 5th. Its kind a long story, but you are all more than welcome to read everything about Lukas thus far at our blog: www.lukascorwin.com if you would like.

In any event, I really look forward to sharing this crazy journey with you all and hope you don't mind me jumping in on these boards with you all!



-- Edited by ChristieC on Monday 11th of April 2011 02:05:09 PM

__________________



Guru

Status: Offline
Posts: 7138
Date: Apr 11, 2011
Permalink  
 

I've been praying and will continue to do so.  I hope it all goes well for your sweet baby boy



__________________
Jo


Guru

Status: Offline
Posts: 1358
Date: Apr 11, 2011
Permalink  
 

Praying for your baby boy, and please do keep us updated.

__________________
Jolynn


Guru

Status: Offline
Posts: 3530
Date: Apr 11, 2011
Permalink  
 

Welcome! I can't imagine how hard that must be. You will be in my thoughts and prayers during this difficult time!

__________________


Member

Status: Offline
Posts: 6
Date: Apr 11, 2011
Permalink  
 

Thanks ladies. Its definitely been a bit of a whirlwind since we found out. I just don't think anything ever entirely prepares you for something like this. I had two totally healthy children in the past and never in my wildest dreams thought this go round would be any different! But, we all have our plan and this is ours. It will all be worth it. I have faith :)

__________________



Guru

Status: Offline
Posts: 1344
Date: Apr 12, 2011
Permalink  
 

many prayers as you continue through your pregnancy and then dealing with everything once he has arrived.

__________________



Guru

Status: Offline
Posts: 662
Date: Apr 13, 2011
Permalink  
 

Many prayers for you and baby boy!

__________________


Member

Status: Offline
Posts: 6
Date: Apr 14, 2011
Permalink  
 

Aww thanks ladies! I haven't been feeling very good this week. Lots of dizzy spells and nausea. I also had a pretty bad bought of contractions on Monday for a good portion of the day. I have a NST on Tuesday and Thursday of next week, so hopefully we can figure out what is going on :(

__________________

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us


Create your own FREE Forum
Report Abuse
Powered by ActiveBoard