Members Login
Username 
 
Password 
    Remember Me  
Post Info TOPIC: KATE


Guru

Status: Offline
Posts: 6179
Date: Feb 13, 2010
KATE
Permalink  
 


So alot of you saw on Facebook that she's had a couple more seizures in the last days hmm

Thursday evening she didn't want to eat dinner and was just wanting to cuddle up in my lap.  I felt her and she felt a little warm so I took her temp and it was low grade (99ish).  I gave her Motrin around 6:30 and she pepped up a bit and finally ate her dinner.

I put Jake to bed and let her cuddle in my bed until 9:00 p.m.  After I put her into bed I went out to work on the computer.  DH went into the bedroom to watch TV.   He yelled for me at 10:05 and I went in and she was having a seizure.  It was so awful to watch.  Her eyes are fixed and off to the side, her body is convulsing, she's very rigid.  We laid her on the floor and undressed her, got cloths to cool her down, I ran to get the therm.  After a bit she seemed to be coming out of it and John was holding her.   She was trying to talk - and this is the worst part of it for me - it seemed like what I remember my grandma being like during/after her stroke.  She was "talking" to us in what seemed like sentences but not one of the words was comprehensible - it sounded like she was talking in a foreign language. 

We were thinking she was out of it but her body was still doing weird things, still rigid, slightly jerking while John was holding her.  I thought it was the cool rags we were putting on her making her shiver but when he handed her to me it was pretty obvious she wasn't through it yet.  I tried to lay her on the bed and it was as if she were a stone statue in a seated position and she yelled out in protest of being laid down.  So I continued to hold her.  We were so scared.  

Her last seizures have lasted 5 minutes or less.    The time they last seems equal to the time we have "tasks" to do - i.e., undress, get cloths out and wet with cool water, take temp, apply cloths.  This one went on beyond that leaving us unoccupied of immediate tasks and leaving us with nothing to do but hold her and/or watch her.   I've realized the "work" of attending to her immediate needs removes my nervousness - if that make any sense.  I'm attending to her, she needs me to actually be doing things therefore that does not give my brain time to wander to "is this causing her permanent damage, why does she sound/look like she's having a stroke, please don't let her choke or aspirate" or any other what if.

All told it lasted at least 25 minutes.  We ended up taking her to the ER.   They didn't really do anything - they put her on abx "in case" and sent us home.  They couldn't find an obvious cause for her fever.  Jake had something viral with a fever 2 weeks ago - maybe she's picked up a similar bug.

I sat on the sofa holding her all day yesterday.  Not 10 minutes after I posted on FB she had another one.   I was home alone and luckily this one was under 5 minutes.  I feel so sorry for her because it's as if her eyes are telling me she's scared but her body is so rigid and she can't talk, she's gurgling with saliva running out her mouth.  It takes her about an hour to get back to semi normal where she is coherent and starts talking again.

We are aggressively treating her fever - every 3 hours with Tylenol/Motrin alternating.  We will most likely drop the Tylenol and go to Motrin every 6 and see how she does this afternoon.  She seems to be feeling better but being full of T & M will do that to a toddler!

Thanks for all of your thoughts and prayers for my girl heart.gif



__________________


Guru

Status: Offline
Posts: 10400
Date: Feb 13, 2010
Permalink  
 

Tons of prayers. You are so strong!

I hope this is the last you ever see of those horrible seizures.

__________________





Guru

Status: Offline
Posts: 5883
Date: Feb 13, 2010
Permalink  
 

Oh Kris-I am so sorry. What terrible stress for all of you. You and your sweet girl have my thoughts and prayers.

__________________
Laura



Guru

Status: Offline
Posts: 7897
Date: Feb 13, 2010
Permalink  
 

how scary. i'm glad she seems to be getting a little better.

__________________


Guru

Status: Offline
Posts: 662
Date: Feb 13, 2010
Permalink  
 

How scary for you all! Praying for no more!

__________________


Guru

Status: Offline
Posts: 1694
Date: Feb 13, 2010
Permalink  
 

oh jeeze - my heart just aches for her (and for you!)

so so sorry your princess has to endure that  cry.gif

hugs and prayers coming your way...


__________________


Guru

Status: Offline
Posts: 998
Date: Feb 13, 2010
Permalink  
 

Oh Kris, I can't even imagine the fear.  My heart breaks for all of you.  Hopefully she feels better soon. :hugs

__________________

Alicia

Jo


Guru

Status: Offline
Posts: 1358
Date: Feb 13, 2010
Permalink  
 

I'm so sorry, Kris. Keeping you both in my prayers.

__________________
Jolynn


Senior Member

Status: Offline
Posts: 498
Date: Feb 13, 2010
Permalink  
 

Kris I can't even imagine how difficult this is for you and Kate.  I pray that the seizures stop.  Have you asked the doctors if there is any long term issues that could result from them?  Or if they last longer than 5 minutes?  It's just so scary and I am amazed at how well you handle yourself.  Hang in there, I'm thinking of you.

__________________



Guru

Status: Offline
Posts: 2164
Date: Feb 13, 2010
Permalink  
 

I'm saying lots of prayers for you guys. I cannot even imagine how scary that is to go through, or to watch.

__________________





Guru

Status: Offline
Posts: 7138
Date: Feb 13, 2010
Permalink  
 

So, so, so, sorry cry  It's absolutley horrible watching your baby go through that.

I hope she outgrows them Kris, so you don't ever have to watch them again!!

-- Edited by Juanita on Saturday 13th of February 2010 07:46:28 PM

__________________


Guru

Status: Offline
Posts: 2797
Date: Feb 13, 2010
Permalink  
 

I am so sorry Kris. cry It breaks my heart, so I have no doubt that it is much more difficult for all of you.  I will continue to send prayers.

__________________


Guru

Status: Offline
Posts: 3966
Date: Feb 13, 2010
Permalink  
 

I hope shes doing better and that this is the last time you have to deal with this.

__________________



Guru

Status: Offline
Posts: 988
Date: Feb 13, 2010
Permalink  
 

I cannot even imagine how scary this is Kris. I'm so sorry you have to go through this and poor baby Kate too. I hope she's feeling better quick and these seizures stop. Hugs mama.

__________________



Guru

Status: Offline
Posts: 1714
Date: Feb 13, 2010
Permalink  
 

oh gosh, kris...i am sooooo sorry!  poor kate. you guys are in my thoughts...i hope she feels better.

__________________



Guru

Status: Offline
Posts: 1322
Date: Feb 14, 2010
Permalink  
 

OMG, Kris, I can't even imagine how awful this must be for you. I think I would lose my shiznit, I really do. (Which, of course, would be the worst thing to do when she's already scared.) Ugh. Ugh ugh ugh.

I will keep Kate in my prayers. Please keep us posted.

__________________


Guru

Status: Offline
Posts: 1303
Date: Feb 14, 2010
Permalink  
 

kris, i am SO sorry.  that sounds awful.  i don't know how you did it, but i am proud of you.  you are a good mommy.  i am praying that kate is better and no more seizures for her.  keep strong heart.gif

__________________


Guru

Status: Offline
Posts: 1771
Date: Feb 14, 2010
Permalink  
 

wow kris, i cant even imagine. i'm so sorry youre going through this - poor little girl :(


__________________


Guru

Status: Offline
Posts: 756
Date: Feb 14, 2010
Permalink  
 

How scary! I'm sorry you guys are dealing with this still, and I pray there are no more ever again!

__________________
~Mel


Guru

Status: Offline
Posts: 676
Date: Feb 15, 2010
Permalink  
 

Kris, that is so awful, for both you and your sweet baby.

I hope she grows out of this, and you don't have to deal with that again cry



__________________
1 2  >  Last»  | Page of 2  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us


Create your own FREE Forum
Report Abuse
Powered by ActiveBoard