So alot of you saw on Facebook that she's had a couple more seizures in the last days
Thursday evening she didn't want to eat dinner and was just wanting to cuddle up in my lap. I felt her and she felt a little warm so I took her temp and it was low grade (99ish). I gave her Motrin around 6:30 and she pepped up a bit and finally ate her dinner.
I put Jake to bed and let her cuddle in my bed until 9:00 p.m. After I put her into bed I went out to work on the computer. DH went into the bedroom to watch TV. He yelled for me at 10:05 and I went in and she was having a seizure. It was so awful to watch. Her eyes are fixed and off to the side, her body is convulsing, she's very rigid. We laid her on the floor and undressed her, got cloths to cool her down, I ran to get the therm. After a bit she seemed to be coming out of it and John was holding her. She was trying to talk - and this is the worst part of it for me - it seemed like what I remember my grandma being like during/after her stroke. She was "talking" to us in what seemed like sentences but not one of the words was comprehensible - it sounded like she was talking in a foreign language.
We were thinking she was out of it but her body was still doing weird things, still rigid, slightly jerking while John was holding her. I thought it was the cool rags we were putting on her making her shiver but when he handed her to me it was pretty obvious she wasn't through it yet. I tried to lay her on the bed and it was as if she were a stone statue in a seated position and she yelled out in protest of being laid down. So I continued to hold her. We were so scared.
Her last seizures have lasted 5 minutes or less. The time they last seems equal to the time we have "tasks" to do - i.e., undress, get cloths out and wet with cool water, take temp, apply cloths. This one went on beyond that leaving us unoccupied of immediate tasks and leaving us with nothing to do but hold her and/or watch her. I've realized the "work" of attending to her immediate needs removes my nervousness - if that make any sense. I'm attending to her, she needs me to actually be doing things therefore that does not give my brain time to wander to "is this causing her permanent damage, why does she sound/look like she's having a stroke, please don't let her choke or aspirate" or any other what if.
All told it lasted at least 25 minutes. We ended up taking her to the ER. They didn't really do anything - they put her on abx "in case" and sent us home. They couldn't find an obvious cause for her fever. Jake had something viral with a fever 2 weeks ago - maybe she's picked up a similar bug.
I sat on the sofa holding her all day yesterday. Not 10 minutes after I posted on FB she had another one. I was home alone and luckily this one was under 5 minutes. I feel so sorry for her because it's as if her eyes are telling me she's scared but her body is so rigid and she can't talk, she's gurgling with saliva running out her mouth. It takes her about an hour to get back to semi normal where she is coherent and starts talking again.
We are aggressively treating her fever - every 3 hours with Tylenol/Motrin alternating. We will most likely drop the Tylenol and go to Motrin every 6 and see how she does this afternoon. She seems to be feeling better but being full of T & M will do that to a toddler!
Thanks for all of your thoughts and prayers for my girl
Kris I can't even imagine how difficult this is for you and Kate. I pray that the seizures stop. Have you asked the doctors if there is any long term issues that could result from them? Or if they last longer than 5 minutes? It's just so scary and I am amazed at how well you handle yourself. Hang in there, I'm thinking of you.
I cannot even imagine how scary this is Kris. I'm so sorry you have to go through this and poor baby Kate too. I hope she's feeling better quick and these seizures stop. Hugs mama.
OMG, Kris, I can't even imagine how awful this must be for you. I think I would lose my shiznit, I really do. (Which, of course, would be the worst thing to do when she's already scared.) Ugh. Ugh ugh ugh.
I will keep Kate in my prayers. Please keep us posted.
kris, i am SO sorry. that sounds awful. i don't know how you did it, but i am proud of you. you are a good mommy. i am praying that kate is better and no more seizures for her. keep strong