This is small so Im sorry to even put it here, but I have been having a UC flare for a while now and had an appt Jan 19 scheduled. They called about a cancellation on monday but there is no way I can go.
Anyway my family said I looked really thin when they were here and I weighed myself yesterday and Im at the lowest weight in my adult life. If I continue losing weight at this same rate there is no way I can wait till January but have no clue what to do from here if there is No appts open.
So prayers that I could gain weight, get seen, and have my flare go away would be appreciated.
Oh Tracy, I am SO SORRY to hear this. I hadn't heard from you about this is a little while, and I was hoping things were getting better.
Did you manage to get more Asacol? I go in on Wednesday for an office visit, I can snag some samples for you and mail them if you want-let me know and I can try and get as many as they will give me.
Have you been trying anything else? Are you losing blood, or is it mostly mucus? If it is blood, you should be taking iron and eating as much iron rich food as you can. I had the same kind of thing-weight loss with lots of blood loss, and you saw how quickly things went downhill. How many times are you going a day?
What about probiotics? VSL#3 is one that is supposed to be really good. I haven't been able to find it in stores here yet, but lots of people talk about that one. I am on MegaFlora Plus, which I found at a health store, and I think it helps. Also, I just started taking psyllium seed powder (not husk, but the husk-which is found in metamucil and such, I think-will bulk up your stools, so that might be a good thing for you too), which many people have said is helpful. I have a ton of it, so I could package some up for you and send it your way if you want to try it out. It tastes pretty gross, but you can mix it with juice, which makes it decent.
Hmmm...what else can we do here...
Could you call your primary and let them know what is going on and request some meds to tide you over? The Asacol or maybe one of the mesalamine rectals?
I really don't think the homeopathic things will necessarily fix things, but they might help positive progress along. But ultimately, you will definitely need some meds to get things back under control. Seriously, if I can help you out with the Asacol, let me know and I will get them and overnight them to you as soon as I can. I'll try and think of some other things that might be beneficial for you. PLEASE tell me how I can help.
supa you are too sweet. i did get the asacol renewed long enough to last till january. Im also on omega three and a prenatal. I havent tryed probiotics in a pill form yet but that may be my next thing to try. Ive only done the yogurt with it thus far. The asacol always seems to help at the beginning and then just doesnt work so well as time goes on. I have 4 pills of colozal left but dont think that works really for me at all and i cant get that at the military hospital.
Right now its mostly mucus only a little bit of blood which Im happy about. Im going probably about 10 or so times a day now but not a lot at each.
Im down to 100.6 as of last night in my pjs. and Id really not get into double digits and I had to go buy some new jeans again as my others were falling off.
Ive only lost 6-7 lbs in 2 months. but to last till january that would put me at like 94 lbs which on a 5'4'' frame is starting to look disgusting, and thus my self esteem is getting a small hit.
Ill look into some of these other things you mentioned. THanks.
