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Supafly


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Date: Jan 13, 2010
Called GI finally...
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So after my 7th time in the bathroom today, I decided it was time to realize things aren't calming down on their own and call the GI.

They called me back quickly, and he wants to up my Humira dosage from bi-weekly injections to weekly.  I really don't know that this is going to solve the problem, but we'll give it a try.  I go in tomorrow afternoon to deal with the paperwork and get a brief physical and then they will dispense more meds.

I'll keep you posted-even Anna prayed at dinner to God to make me better. :( I hate that they are old enough now to get a sense of what is actually going on.  Last time I flared this badly, they were too young to notice.

Anyway, that is the update.  Things are no better, perhaps worse, but I am hoping it turns around!

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Laura
Sonya


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I'm so glad you called.

i really hope this works for you.

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Sara


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I am glad you decided to call. I hope you get to feeling better soon.

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apies


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oh geez, laura, i was really hoping today would be better.

you've been in my thoughts and you'll continue to be there.

keep us posted.

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Supafly


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Thanks ladies. heart.gif

I will keep you posted. I know more now about how this drug works, so I am not too hopeful about it, but it is better than steroids for the time being!

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Laura
3s_a_crowd


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hopefully youll get relief soon.

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happylib


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I am so glad you called buy so sad that it was necessary.  I will continue to pray for you.  Let us know how it goes tomorrow.

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crystal


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supa, i'm so sorry that things are flaring for you again :(  and it breaks my heart that anna knows what is going on.  i am praying for you that upping the meds will make you better :hugs

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daisy


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laura - i'm so sorry. this sounds like a nightmare. i hope this course of action works for you.


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a_mastermom


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Laura, I am so glad you called! I hope you get some relief soon...I can't even imagine trying to deal with this. My heart goes out to you.

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Alicia
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Supa, talking to a friend today with Chrons who is on humara(?). She was telling me that they flare around weather change and change of seasons. Do you notice this?

Do you have joint pain with UC?

JuicePlus is something she is using to help get the nutrients and that. I do not know a lot about it, but thought I would mention. He has a lot of joint pain and they are finding this helps people with autoimmune diseases. I have yet to read about  it myself, but just passing it on.



-- Edited by CoffeeQueen on Thursday 14th of January 2010 08:53:18 AM

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sbucking


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I hope this brings you much deserved relief!!

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Dddiii


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I am so sorry this is going on again Laura!  I was so hoping things would just get better and better when you started the new medication.

As always, I hope this appointment brings the miracle cure you need.  Enough is enough already. 

heart.gif

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Supafly


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CoffeeQueen wrote:

Supa, talking to a friend today with Chrons who is on humara(?). She was telling me that they flare around weather change and change of seasons. Do you notice this?

Do you have joint pain with UC?

JuicePlus is something she is using to help get the nutrients and that. I do not know a lot about it, but thought I would mention. He has a lot of joint pain and they are finding this helps people with autoimmune diseases. I have yet to read about  it myself, but just passing it on.



-- Edited by CoffeeQueen on Thursday 14th of January 2010 08:53:18 AM


Thanks Melissa.  I definitely noticed certain seasons are hard on me.  Fall is when things can be iffy for me, but not generally *too* bad unless like this year, we have a lot of illness in the house, then winter and the transition into spring is usually brutal.  Late spring into summer is by far my best time of year healthwise.  This bitter winter weather might be playing a role too-IDK.  It hasn't been this cold here in the past few years, so I haven't noticed the effects of the weather as much as the change of seasons.  Many UC people have certain trigger seasons-usually either fall or the winter/spring thing-or both.

I have minor joint pain from time to time, but most of that is because of the meds I take or have taken.  I have very little joint pain otherwise.  Some people with UC do, but from what I understand, it is more common for Crohns patients to have joint pain.

When I am in a flare, I definitely need whatever I can get my hands on for nutrients, so I will look into that juice plus.  My heart goes out to your friend too.  From everything I have been told, Crohns is more difficult to manage than UC.  It can be very trying living with a chronic disease.

Again, thank you all for your continued prayer and thoughts-and just for taking an interest at all.  It means a lot to me. heart.gif

I picked up my additional meds today, so I am hoping it will help, but not expecting it to be a miracle by any means.  I'll keep you posted...

 



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Laura
3s_a_crowd


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i hope the meds help you out. Keep me updated

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princess_x_4


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Date: Jan 14, 2010
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praying for you.

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Lizzy


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Date: Jan 14, 2010
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I am so sorry you are going through this, Laura. You are in my prayers ((hugs))

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RedHawk


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Date: Jan 15, 2010
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That sucks! Sorry that this is happening, and I hope the Humeria helps.

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