one of my former students lost his daughter to trisomy 18. they didn't know she had it until birth. she lived only a few days and it was devastating for their whole family.
we are very lucky.
-- Edited by apies on Friday 28th of August 2009 03:50:10 PM
i have such huge admiration for people with that kind of courage.
i totally balled my eyes out.
makes me feel like i took the easy road insisting on an amneo - trisomy 13 and 18 are things i am very high risk for over 40 and i had thought that if that happened to us it would have been an obvious decision to terminate. i just really question if i would have the strength to do that they did. but amazingly, seeing their story makes me think that maybe i could. (not sure how the kids and bert would handle it)
WOW! My tears are pouring down my face and I can't stop them!! What beautiful, beautiful people they are, and how BRAVE!!
I love their strength and her words when she said "We didn't terminate because he's our son" How many people could've done that?? What incredible faith they have!!
And Nicole, your absolutely right. We don't realize how very lucky we are to have healthy children!! I mean, all 3 of mine have their issues, but you know what--they're ALIVE and I have them, and I can dress them, and smell them, and cuddle with them everyday!! Thank GOD for that!!
wow. what an amazing story, and a beautiful baby. i don't know if i could go through all of that the way they did. i just don't know. they knew that this is the "way it was supposed to be according to god", and that seemed to bring them comfort and strength to get through it. i wish i could be that strong, but i don't think i could. i am so happy i didn't have to.
i have such huge admiration for people with that kind of courage.
i totally balled my eyes out.
makes me feel like i took the easy road insisting on an amneo - trisomy 13 and 18 are things i am very high risk for over 40 and i had thought that if that happened to us it would have been an obvious decision to terminate. i just really question if i would have the strength to do that they did. but amazingly, seeing their story makes me think that maybe i could. (not sure how the kids and bert would handle it)
and the dad was right - he was so beautiful.....
Megan, I think you have a great point about your kids. I think this would be even harder to deal with if you have existing children... I would be seriously conflicted at this stage in the game. (Not interested in any sort of debate surrounding this, just ftr... LOL!)
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